Your Way Forward A resource for patients and their families.
YOUR WAY FORWARD Now is the time you move on with your health and begin a new chapter. You are being discharged as your care with the Cancer Program is complete and your team is comfortable transitioning you to the next step. If you have a Primary Care Provider (Family Doctor or Nurse Practitioner), they are well-equipped to take care of you. If you do not have a Primary Care Provider, this package has resources to help you connect with one. Your Primary Care Provider will be your go-to person in regards to your care. Leaving the Cancer Program may seem frightening, and you could be thinking, “Now what?” Be your own advocate. Don’t be afraid to ask questions. No one knows your body better than yourself. This package will help empower you to continue on with the rest of your life. We hope the information contained in this package is beneficial to you and your loved ones as you continue on your journey. This is YOUR WAY FORWARD. Sincerely yours, Erie St. Clair Regional Cancer Program Patient & Family Advisory Council
CONTENTS
Additional Resources:
Community Resources Available to You
• Canadian Cancer Society Life After Cancer Treatment Booklet • CancerCare.org Fact Sheets:
• Professional Counselling Services........ 3 • Wellness Resources............................... 4 • Clinical Services.................................... 7 • Local Support Groups & Peer Supports................................................. 8 • Online Support Forums........................10 • Financial Supports................................11 • Volunteer Opportunities.......................15
Frequently Asked Questions • Practical................................................16 • Symptom-related..................................17 • Other.....................................................19
Notes Pages.........................................21-22
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• Counselling to Better Cope with Survivorship • Coping with Sleeping Difficulties During and After Treatment • Coping with the Fear of Recurrence • Adult Cancer Survivor: Emotional Concerns • Coping with Sadness Throughout and After Treatment • Exercise for People with Cancer • The Hospice of Windsor and Essex County Wellness Centre Pamphlet • The Hospice of Windsor and Essex County Resource Library Pamphlet
COMMUNITY RESOURCES AVAILABLE TO YOU Social Workers work in a number of different
settings and organizations. If you are a patient of any of the following primary care organization types, contact your primary care provider to access counselling services: • Community Health Centres • Family Health Teams • Nurse Practitioner-Led Clinics
Canadian Mental Health Association
Professional Counselling Services
Provides a variety of programs and services for the most seriously mentally ill along with those dealing with moderate mental illness, such as anxiety and depression. For more information: • Lambton-Kent Branch: Visit www.lambtonkent.cmha.ca or call 519-436-6100. • Windsor-Essex County Branch: Visit www.cmha-wecb.on.ca or call 519-255-7440. • To access services: Contact your primary care provider for a referral.
Chatham-Kent Community Health Centres
Provides primary care and counselling services. • For more information/to access services: Call 519-397-5455.
Cornerstone Family Care (Windsor-Essex)
Offers individual, family, or group meetings with a therapist to resolve problematic behaviours, beliefs, feelings, relationship issues, and/or somatic complaints (sensations in the body). • For more information/to access services: Visit www.cornerstonecare.ca or call 519-253-0333.
Employee Assistance Programs (EAP)
EAPs are offered by some workplaces and can help keep employees and their families functioning at their best. To learn if your workplace offers an EAP, ask your union representative, health and safety representative, or human resources officer.
Essex County Nurse Practitioner-Led Clinic
Provides primary care and counselling services. • For more information/to access services: Call 519-776-6856 (Essex location) or 519-946-0740 (Drouillard location).
Family Counselling Centre (Sarnia-Lambton)
Provides a variety of professional counselling support, prevention and coordination services. Through solution-focused interventions, professionally trained counsellors help individuals and families to improve their level of functioning, their satisfaction with life and their involvement with interpersonal relationships. • For more information/to access services: Visit www.familycounsellingctr.com or call 519-336-0120.
Family Services Kent
Provides residents of Chatham-Kent with a wide range of counseling and community-based services. • For more information/to access services: Visit https://familyservicekent.com/ or call 519-354-6221.
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Family Services Windsor-Essex
Helps individuals, couples and families manage life, marriage and family challenges. Qualified staff can help deal with anxiety, depression, anger, loss and grief, along with other mental health and wellness issues. Offers group or one-on-one counselling, as well as walk-in supports, at seven locations across WindsorEssex. • For more information/to access services: Visit https://fswe.ca/ or call 519-966-5010.
North Lambton Community Health Centre
Provides primary care and counselling services. • For more information/to access services: Call 519-786-4545.
The Hospice of Windsor and Essex County
Provides one-on-one counselling services for anyone dealing with residual effects from their cancer journey. Self-referrals are accepted. • For more information/to access services: Call 519-974-7100 and ask for “intake”.
Windsor Essex Community Health Centre – Sandwich Community Health
Provides primary care and counselling services to area residents who do not have a primary care practitioner. • For more information/to access services: Call 519-258-6002.
Windsor Essex Community Health Centre – Teen Health
Offers individual and group therapy for youth aged 12-24 on a wide variety of topics including depression, anxiety, grief, suicidal thoughts, self-harm and eating disorders. • For more information/to access services: Visit www.wechc.org/teenhealth_about or call 519-253-8481.
Are you Sleeping? (Windsor)
Can’t Sleep? Watching the Clock? Come discover natural secrets to having a better night’s sleep. Learn about the best time for optimum sleep and easy ways to make this happen. Learn how to fall asleep, stay asleep and wake up feeling rested. • To register: Call 519-974-7100 ext. 2202.
Canadian Cancer Society (CCS) Resource Books
The Canadian Cancer Society has a number of helpful booklets available at www.cancer.ca/ publications including Exercises After Breast Surgery and Life after Cancer Treatment. Hard copies of the book can also be ordered from the site.
Wellness Resources
Chair Yoga (Leamington)
Yoga is the union between body and mind and can bring a sense of calm, relaxation and a sense of peace to your life. The comfort and support of a seated practice makes yoga accessible to everyone. • To register: Call 519-974-7100 ext. 2202.
Cottage Dreams
A registered charity that provides free time away in a donated cottage to bring cancer survivors and their families together to recover, reconnect and rebuild their lives after successfully completing treatment. Note: there is a $150 application fee that is non-refundable if your application is approved. If your application is not approved, your $150 will be returned.
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• More information/access application: www.cottagedreams.ca or call 705-457-9100 • How to apply: complete the application and return through email (info@cottagedreams.org), fax (705-457-9188), or mail (195 Highland Street, P.O. Box 1300, Haliburton, ON K0M 1S0)
Craft Class: Beading (Windsor)
Learn it, make it, and bring creativity to life with crafting techniques! No experience is necessary and all supplies are provided. • To register: Call 519-974-7100 ext. 2202
Creating Memory Albums and Card Making (Windsor & Leamington)
A fun and relaxing time of displaying and preserving your precious family photos and stories. A starter kit is provided. A leader will coach you in making scrapbooks and cards. • To register: Call 519-974-7100 ext. 2202
Coffee House (Windsor)
Singers, poets, story tellers and musicians come the last Wednesday of every month and share their talent. • To register: Call 519-974-7100 ext. 2202
Food for Thought Luncheons (Sarnia-Lambton)
Luncheons with rotating topics are held once a month from 12:00-2:00pm and are free of charge. • More information/how to join: Call 519-337-0537
Game/Card Club (Windsor)
Join for a variety of games and socialization. • To register: Call 519-974-7100 ext. 2202
Guitar Classes (Windsor)
Bring your guitar and learn basic chords and simple current songs. Class is open to all ages/skill levels. • To register: Call 519-974-7100 ext. 2202
Healing with Art (Windsor)
Express your artistic side and enhance your healing. No experience is necessary and all supplies are provided. • To register: Call 519-974-7100 ext. 2202
Heartbeat Drumming (Leamington)
“Drumming is fun, therapeutic in its repetition, and a fantastic way to challenge and exercise our brains (even better than crosswords!) as we get older. It is also a very effective way to ‘connect’ with others... finding our common heartbeat.” • To register: Call 519-974-7100 ext. 2202
Jammin’ For Wellness (Windsor)
Do you play an instrument or sing? Would you like to go out to the local jams but are just too tired? Then join Joe as we utilize playing live music to enhance our wellness. PA, mics, drums, and keyboard are all here. • To register: Call 519-974-7100 ext. 2202
Knitting with Libby (Windsor & Leamington)
Express your artistic side and enhance your healing. Join Libby to create some beautiful crafts and share some good stories. No experience is necessary and all supplies are provided. • To register: Call 519-974-7100 ext. 2202
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Paint ‘N Palooza (Leamington)
Learn how to make beautiful pictures for your home or as a gift reducing stress and creating something special. All supplies are provided. • To register: Call 519-974-7100 ext. 2202
RENEW Life After Cancer Program
Includes a free educational series, for both cancer survivors and their family members that is delivered by our local experts. Additionally, there is a back-to-fitness exercise program specially designed for any patients living or who have lived with cancer, delivered by certified professionals across the region. This is offered by the Erie St. Clair Regional Cancer Program in partnership with the Windsor Cancer Centre Foundation and the Bluewater Health Foundation. • Visit www.wrh.on.ca/renew, call 519-254-5577 ext. 58733 or email renew@wrh.on.ca
Smoking Cessation Resources
Below are some resources that will help you get on the path to quitting smoking. • Quit Medications Paired with Counselling: • City Centre Health Care (call 519-971-0116) • Erie Shores HealthCare (call 519-326-2373 ext. 4014 and ext. 4522) • Windsor-Essex County Health Unit (call 519-258-2146 ext. 3100) • Group Sessions/Workshops: • Breathing Easy at City Centre Health Care (call 519-971-0116) • Leamington and Area Family Health Team (call 519-322-1100) • STOP on the Road (call 519-258-2146 ext. 3100 or visit www.nicotinedependenceclinic.com/ en/stop/Pages/SOR-Workshop-Finder.aspx) • Windsor-Essex County Health Unit (call 519-258-2146 ext. 3100) • Phone and Online Quit Programs: • Break it Off free mobile app (visit https://breakitoff.ca/) • Indigenous Services (visit www.tobaccowise.com) • Lung Health Information Line (call 1-888-344-5864 or visit www.on.lung.ca) • Pregnets (visit www.pregnets.org) • Smokers’ Helpline (call 1-877-513-5333 or visit www.smokershelpline.ca) • If you are a patient of any of the following primary care organization types, contact your primary care provider to access smoking cessation: • Community Health Centres • Family Health Teams
St. Joseph’s Hospice (Sarnia-Lambton)
Offers a variety of programs and events for cancer survivors and their families. • More information/registration: Visit www.stjosephshospice.ca/?q=programs or call 519-337-0537
The Resource Library at The Hospice of Windsor and Essex County
Provides resources to enable the patient, family and caregivers to become partners in their care. The library contains an abundance of books, DVDs, CDs, and pamphlets that are constantly being updated. Resources available include: • Lends books, DVDs, CDs for up to 4 weeks • Research service on specific topics • Complimentary information – disease specific, articles, pamphlets, children’s activity book • Access library at: 6038 Empress Street, Windsor, Ontario • More information: Call 519-974-7100 ext. 2222, email info@thehospice.ca, or visit www.thehospice.ca/ article-15/resource-library
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The Hospice of Windsor and Essex County – Wellness Centre Programs
Offers a variety of programs and events for cancer survivors and their families in Windsor and Leamington. • More information/registration: Visit www.thehospice.ca/article-18/patient-family-programs-wellnesscentre or call 519-974-7100
Veggie Gardens for Health (Leamington)
Come on out to this hands-on workshop to learn about the best veggies for your health & plant a veggie bowl to take home. • To register: Call 519-974-7100 ext. 2202
Yoga Nidra (Leamington)
Enhance your health through breathing and postures that nurture your physical and emotional healing. Open to everyone, no physical limitations. • To register: Call 519-974-7100 ext. 2202
Chronic Disease Self-Management Program – Master Your Health
A free workshop series where participants set goals and action plans, problem solve, improve coping skills, and learn about becoming more active, eating healthier and managing difficult emotions. Program also focuses on managing medications, pain and fatigue, using positive thinking, and making decisions about health. Available in Windsor-Essex, Chatham-Kent, and Sarnia-Lambton. • More information/registration: Call 1-855-2593605 or email escsm@wechc.org
Dietitians
Clinical Services
Dietitians work in a number of different settings and organizations. If you are a patient of any of the following primary care organization types, contact your primary care provider to access a dietitian: • Community Health Centres • Family Health Teams • Nurse Practitioner-Led Clinics • If you are not a patient of one of the above organizations, visit www.dietitians.ca/your-health/find-adietitian. The dietitians listed with this service work on a fee-for-service basis. If you have employee health insurance, check to see if nutrition counselling services by a registered dietitian are covered.
Energy Programs (Windsor & Leamington)
Three energy work modalities (Radiant Touch, Reiki and Therapeutic Touch) are offered. Trained Volunteer Practitioners hold their hands on or just above your body which aligns your chakras or energy centres and allows your mind and body to gain a unique state of very deep rest. • To register: Call 519-974-7100 ext. 2202
Finding a Primary Care Provider
If you do not have a primary care provider, it is strongly advised that you now get one. Some resources to assist with this are: • Essex County Medical Society: Visit http://www.ecms.org/A_Page_Name for a listing of providers accepting patients in Windsor-Essex County. • Health Care Connect: Call 1-800-445-1822 or go to www.ontario.ca/healthcareconnect to register online. Your Way Forward
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Lymphedema Education & Awareness Class
Offered for free at the following locations through videoconference on the 1st Friday of every month from 2:00-3:00pm. No registration is required. • Bluewater Health (Thames Room) • Chatham-Kent Health Alliance (Sydenham Room) • Erie Shores HealthCare (Dietary Conference Room) • Windsor Regional Cancer Centre (Casino Cares Room)
Symptom Management Guides
Cancer Care Ontario has developed 17 guides to provide past and present cancer patients with information to maintain their well-being, how to recognize symptoms and side effects, what they can do to manage them at home, and when to call their primary care provider. • Access guides online in various languages: www.cancercareontario.ca/en/symptom-management
All Cancer Types Canadian Cancer Society’s Peer Support Program
This free program will match you with a peer support person who has lived through a similar experience. The peer support person will contact you by phone. • More information: https://match.cancer.ca or call 1-888-939-3333 • How to apply: online at https://match.cancer.ca/ register
Caregiver Support Groups (Sarnia-Lambton)
Local Support Groups & Peer Supports
A caregiver education series that runs for four weeks and helps caregivers discover ways to care for themselves and their loved one. Offers a supportive environment led by trained professionals who understand the challenges of caregiving. • More information/how to join: Call 519-337-0537 or email ladams@sjhospice.ca
Coping with Caregiving (Windsor)
This support group meets monthly and is open to any adult who is providing physical and/or emotional support to someone living with a life-altering diagnosis. Themes of the group will include coping with the extra work of being a caregiver, changing roles in the family, self-care for care-givers, advocating and planning for the care of their loved one. Volunteer transportation may be available with advance notice. • More information/how to join: Call 519-974-7100 ext. 2202
Lymphedema Support Group (Windsor-Essex)
Offered at Active Body Physical Therapy once a month from 10:00-11:00am. • More information/registration: Email maddie.simone@yahoo.com
Sharing & Caring Drop-In Group (Windsor)
This support group is open to any adult living with a life-altering diagnosis and caregivers. The group meets twice monthly on a Tuesday morning from 9:30am-12:00pm for support. Half of the group consists of a topic driven discussion and the second half is a peer support based check-in. • More information/how to join: Call 519-974-7100 ext. 2202
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Blood Cancer Lymphoma Support Group (Sarnia-Lambton)
A blood cancer support group for patients with all forms of blood cancers and caregivers held on the first Tuesday of every month at 7:00pm. • More information/how to join: Email dmorris@ebtech.net
Brain Cancer Windsor Brain Tumour Support Group
Helps survivors, family and caregivers through their journey with a brain tumour by providing connections with others who have faced life with a brain tumour thereby offering reassurance, reducing feelings of isolation and reinforcing a positive, hopeful attitude. Group meetings are on the 3rd Wednesday of each month from 7:00-8:30pm. • More information/how to join: www.braintumour.ca/292/windsor-ontario or call 1-800-265-5106
Breast Cancer PINKS (Windsor-Essex)
A local group for women with breast cancer that meets monthly at Heritage Park Alliance Church on the first Monday of each month (excluding holidays) from 7:00-9:00pm • More information/how to join: Call 519-992-3901 or email pinkswindsor@groups.facebook.com
Sarnia-Lambton Breast Cancer Society
A group that meets monthly (usually 3rd Wednesday of the month from 6:30-8:00pm) at the Chris Dawson Center. • More information/how to join: Call 519-336-0746
Colorectal Cancer Windsor & District Ostomy Association
Regular self-help and moral support group meetings for ostomy patients including information on proper ostomy care and management, the opportunity to exchange ideas, helping ostomy patients return to normal living, and exchanging of ideas and public education. • More information/how to join: https://windsoressex.cioc.ca/record/WIN0975, call 519-839-4980 or email rbreitsma@gosfieldtel.com
Sarnia-Lambton Ostomy Support Group
Meetings with education which also includes a home visiting program with trained volunteers. • More information/how to join: Call 519-332-6669 (enter box # 678) or email ostomysarnialambton@gmail.com
Gynecological Cancer Windsor Facebook Group
A Closed Facebook Group has been organized by and for women with gynecological cancers. Members of the group meet socially about once a month. • More information/how to join: Email britt.kascjak@gmail.com
Multiple Myeloma Windsor & District Multiple Myeloma Support Group
A patient-managed and patient-centred group comprised of Myeloma & MGUS patients, newly diagnosed patients, caregivers, as well as a circle of mutual support from those who are further along in their journey with myeloma. The group often has a guest speaker and meets every second month on Saturdays from 2-4pm. • More information/how to join: www.thehospice.ca/article-18/patient-family-programs-wellness-centre, call 519-974-7100, or email jcartlidge@hotmail.com Your Way Forward
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Prostate Cancer Prostate Cancer Support Group
Monthly support groups for men living with prostate cancer and their families. The group often has an educational speaker, sharing the most up-to-date information regarding prostate cancer. • Windsor-Essex: The group meets the 2nd Tuesday of each month from 7-9pm. • More information/how to join: www.thehospice.ca/article-18/patient-family-programs-wellness-centre or call 519-974-7100 • Sarnia-Lambton: The group meets the 2nd Tuesday of each month from 7:30-9pm. • More information/how to join: www.eriestclairhealthline.ca/displayService.aspx?id=40172 or call 519365-1599 or 519-869-4015 • Chatham/Wallaceburg: The group meets the 2nd Thursday of each month from 7-8:30pm. • More information/how to join: Call 519-365-1599 or 519-627-2106
Back at Work Online Series (Moving Beyond Cancer and Managing Stress at Work)
Two online programs offered in an online environment to help people with cancer and cancer survivors return to work. • More information/to register: https://wellspring.ca/ back-at-work-online-series/
Brain Fog for Young Adults Online Session
Brain fog is an educational program that teaches ways to address and improve cognitive functioning. Participants meet with others who are experiencing similar difficulties and learn proven strategies that can be adapted to individual styles and daily needs. • More information/to register: https://wellspring.ca/ brain-fog-for-young-adults-online/
Online Support Forums/Resources
Canadian Cancer Society CancerConnection.ca
A free online community where people facing cancer, or who have faced cancer, can share experiences and build relationships to help them through their cancer journey. • More information: https://cancerconnection.ca/guidelines or call 1-888-939-3333 • How to join: https://cancerconnection.ca/registration
Cancer Chat Canada
Provides free and professionally-led online support groups for Canadians affected by cancer, including patients, survivors and family members. All chat sessions are typed (text-based, no voice/audio) and take place in real time, with real participants. Groups meet once a week for 90 minutes, for about 10 to 12 weeks, in a live “chat” room on the Internet. • More information: https://cancerchat.desouzainstitute.com or call 1-844-725-2476 • How to join: https://cancerchat.desouzainstitute.com/users/register
Kids Grief
A free online resource that helps equip parents with the words and confidence needed to help their children grieve life’s losses in healthy ways. • More information: https://kidsgrief.ca/
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OVdialogue
An online community where women with ovarian cancer can connect with one another for advice and encouragement. This secure discussion board is professionally moderated and available anytime, anywhere. • More information/how to join: https://ovdialogue.ovariancanada.org/?_ga=2.115929413. 2117317566.1551106676-1568089483.1551106676
Returning to Work Online Sessions
A 6-week educational and support program designed to help cancer patients achieve a successful and sustained return to work following an absence due to cancer. Topics include readiness to work, need for accommodation by your employer, treatment side-effects that may impact job performance, and how to get ready for the return. • More information/to register: www.wellspring.ca/returningtowork
Whether or not you are insured, you may find yourself struggling with outstanding medical bills from your cancer treatment. Consider the following options. Assistive Devices Program (ADP)
The ADP is here to help people with long-term physical disabilities pay for customized equipment, like wheelchairs and hearing aids. The ADP also helps cover the cost of specialized supplies, such as those used with ostomies. • More information: https://www.ontario.ca/page/ assistive-devices-program
Financial Supports
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Canada Pension Plan (CPP)
CPP pays money every month to people who: Are between the ages of 18 and 65 Have paid into the CPP for a certain number of years Are disabled according to CPP rules (a disability can be physical or mental) • More information: www.canada.ca/en/services/benefits/publicpensions/cpp.html or call 1-800-277-9914
Canada Pension Plan Disability Benefit (CPP-D)
CPP-D provides disability benefits to people who have made enough contributions to the CPP and who are disabled and cannot work at any job on a regular basis. Benefits may also be available to their dependent children. • More information: www.canada.ca/en/services/benefits/publicpensions/cpp/cpp-disability-benefit.html • How to apply: You must apply in writing. Additional information can be found at www.canada.ca/en/ services/benefits/publicpensions/cpp/cpp-disability-benefit/apply.html
Caregiving Benefits and Leave
Through Employment Insurance, you could receive financial assistance of up to 55% of your earnings, to a maximum of $562 a week. These benefits will help you take time away from work to provide care or support to a critically ill or injured person or someone needing end-of-life care. • More information: www.canada.ca/en/services/benefits/ei/caregiving.html
Ceridian Cares
An employee-driven charity that provides assistance to families that require support to improve the communities in which we live and work. Recipient must be an individual or family in need of financial assistance related to the types of items supported by Ceridian Cares (clothing, footwear, food and basic household needs, medical, etc.). • More information: www.ceridiancares.ca • How to apply: www.ceridiancares.ca/application
Easter Seals
Provides financial assistance of up to $3,000 per year, per child to help purchase essential mobility equipment such as wheelchair, walkers, ramps or lifts. • More information: www.easterseals.org/services/direct-financial-assistance/
Employment Insurance (EI) Sickness Benefits
The EI program offers temporary financial assistance to unemployed workers who would otherwise be available to work, but are unable to because of sickness, injury, or quarantine. Eligible individuals could receive up to a maximum of 15 weeks of EI sickness benefits. • More information: www.canada.ca/en/services/benefits/ei/ei-sickness.html
Guaranteed Income Supplement (GIS)
Provides a monthly non-taxable benefit to Old Age Security (OAS) pension recipients who have a low income and are living in Canada. • More information: www.canada.ca/en/services/benefits/publicpensions/cpp/old-age-security/guaranteedincome-supplement.html
Housing Stability Plan (HSP)
The City of Windsor has developed the Housing Stability Plan (HSP) to provide assistance for rental arrears to avoid eviction. • More information: www.citywindsor.ca/residents/housing/Housing-with-Supports-and-HomelessnessPrevention/Pages/Rent-and-Utility-Related-Assistance.aspx
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Keep The Heat
An emergency assistance program that provides funding for heat and energy for those who are experiencing financial difficulties and are in receipt of a notice of termination of heating utilities. Must be a low income family, single and/or senior. WINDSOR-ESSEX APPLICATION SITES: • Can-Am Native Non-Profit Homes: 519-977-7782 • Housing Information Services: 519-254-4824 • Unemployed Help Centre: 519-944-4900 • Amherstburg Community Services: 519-736-5471 • South Essex Community Council (Leamington): 519-326-8629 • More information: https://windsoressex.cioc.ca/record/WIN0506
Low Income-Energy Assistance Program (LEAP)
If you’re behind on your electricity or natural gas bill and face having your service disconnected, you may qualify for emergency financial help through the Low-income Energy Assistance Program (LEAP). • More information: www.oeb.ca/rates-and-your-bill/help-low-income-consumers/low-income-energyassistance-program
Neighbourhood Charitable Alliance
A local, volunteer driven organization making a difference in the community through raising money to provide financial assistance to local families and individuals facing a difficult time. • More Information: www.neighbourhoodcharitablealliance.com/ • How to apply: www.neighbourhoodcharitablealliance.com/give/#need
Old Age Security (OAS)
The Government of Canada’s largest pension program that is funded out of the general tax revenues of the Government of Canada. The OAS pension is a monthly payment available to seniors aged 65 and older who meet the Canadian legal status and residence requirements. • More information: www.canada.ca/en/services/benefits/publicpensions/cpp/old-age-security.html
Ontario Electricity Support Program (OESP)
The OESP is an Ontario Energy Board (OEB) program that lowers electricity bills for lower-income households. The OESP provides a monthly credit to eligible customers based on household income and household size. The OESP credits are applied directly to eligible customers’ bills. • More information: https://ontarioelectricitysupport.ca/ • To apply: https://ontarioelectricitysupport.ca/SelfAssessment
Ontario Guaranteed Annual Income System (GAINS)
Provides a monthly, non-taxable benefit to low-income Ontario seniors. Payments are provided on top of the Old Age Security (OAS) pension and the Guaranteed Income Supplement (GIS) payments you may receive from the federal government. Together, the total maximum benefits from OAS, GIS and GAINS is the guaranteed income level. The Province guarantees that eligible Ontario seniors will have at least this minimum level of income. • More information: www.ontario.ca/page/guaranteed-annual-income-system-payments-seniors#section-0
Ontario Disability Support Program (ODSP)/Ontario Works (OW)
Either the OW or the ODSP can help you with costs. The ODSP offers: Money to help you and your family with living costs Benefits for you and your family, including prescription drugs, vision care and nutrition products for some patients Help finding and keeping a job, and moving up in your career • More information: www.mcss.gov.on.ca (click Social Assistance) or call 1-800-789-4199 Your Way Forward
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Ontario Drug Benefit (ODB)
The ODB program covers most of the cost of more than 4,400 prescription drug products. You will qualify for the ODB program when you turn 65 years old. Some of you will qualify before you reach that age because you’re: living in a long-term care home or a home for special care, or enrolled in one of these programs: • Home care • Ontario Works • Ontario Disability Support Program • Trillium Drug Program • OHIP+: Children and Youth Pharmacare • More information: www.ontario.ca/page/get-coverage-prescription-drugs#section-0
Ostomy Grant
Any permanent resident of Ontario who has a valid health card and has a permanent ostomy or a temporary ostomy for at least six months, may apply for funding under the Assistive Devices Program. The payment is given twice per year. • More information: www.forms.ssb.gov.on.ca/mbs/ssb/forms/ssbforms.nsf/ (search Ostomy Grant) or call 1-800-268-6021
Short-Term Disability from Employer or Long-Term Disability from Employer
Disability insurance can help protect you and your family from an unexpected illness or accident that leaves you unable to work and earn an income. Generally, disability insurance replaces between 60% and 85% of your regular income, up to a maximum amount, for a specified time if you temporarily can’t work or are permanently disabled due to an injury or illness. • More information: www.canada.ca/en/financial-consumer-agency/services/insurance/disability.html
Social Services Financial Assistance
May help with costs when all other possibilities have been explored. • More information: www.citywindsor.ca (search Social Services) or call 519-255-5200 (Windsor) / 519-946-9988 (Leamington)
Tax Credits for Patients and their Caregivers
Cancer patients and their families can get tax deductions for some things including the cost of parking, travel, finding a place to stay, meals and drugs. The costs can be for the patient and those who go to appointments with them. The amount of help you can get will change over time. • More information: www.cra-arc.gc.ca (search Medical Expenses) or www.canada.ca/en/financialconsumer-agency/services/caring-someone-ill/tax-credit-caregiver.html
Trillium Drug Program (TDP)
For people who spend approximately 3 to 4% or more of their after-tax household income on prescriptiondrug costs. To qualify, you must not already qualify for Ontario Drug Benefit (e.g. you’re under 65 years old and not enrolled in a program such as Ontario Works) and have a valid Ontario health card. • More information: www.ontario.ca/page/get-help-high-prescription-drug-costs
United Way: Emergency Assistance Fund
Family Services Windsor-Essex (FSWE) processes the requests and makes the final decision about who receives support. This program is in collaboration with United Way Centraide Windsor-Essex County, although the United Way is not part of the decision making process. • More information: Visit www.weareunited.com/servlet/eAndar.article/62/Emergency-Assistance-Fund or call 519-966-0361
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Veteran’s Affairs (VA)
The VA has several financial support options, including: the assistance fund, Canadian Forces income support, several specific benefits (i.e. death, detention), funeral assistance, compensation benefits and additional retirement options. • More information: www.veterans.gc.ca/eng/services/financial
Workplace Safety & Insurance Board (WSIB)
To be eligible for WSIB insurance benefits, you must: Have a worker-employer relationship with an employer covered by the WSIB Have an injury or illness directly related to your work Promptly file a claim with the WSIB Provide all relevant information requested by the WSIB to help us determine your benefits Consent to the release of functional abilities information to your employer by the health care professional treating you If applicable, there are several benefits available dependent on your eligibility (i.e. benefit for loss of earnings, non-economic loss, etc.). • More information: https://tinyurl.com/yytz8opo
Erie St. Clair Regional Cancer Program Patient & Family Advisors
A group of past and present patients, family members, and caregivers who have experienced the cancer journey first hand. They provide a patient voice and a patient perspective from across the region to help improve patient’s experience throughout their cancer journey. • More information: www.wrh.on.ca/CancerProgram PatientsFamiliesCaregivers#RESOURCESAND INFORMATION or call 519-254-5577 ext. 52800 • How to apply: Call 519-254-5577 ext. 52800 or email escrcp.pfac@wrh.on.ca
Volunteer Opportunities & Ways to Give Back
Erie St. Clair Peer Support Listing
A contact list of past patients, family members, and caregivers who have experienced the cancer journey first hand and would like to provide their support as a peer to present patients. • If you would like to have your contact name and number on this listing, please call 519-254-5577 ext. 52800 or email escrcp.pfac@wrh.on.ca.
Windsor Cancer Centre Foundation Donations
Donations to the Windsor Cancer Centre Foundation help bring comfort, healing, and hope to those living with cancer in our community. Your donation is so very important to our Patients. • If you would like to make a donation to the Windsor Cancer Centre Foundation, call 519-254-5577 ext. 58634 or donate online at http://windsorcancerfoundation.org/.
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FREQUENTLY ASKED QUESTIONS Practical It’s time to return to work … What do I do now?
Contact your employer to ask what they need from you. Typically, a doctor’s note stating that you are able to return to regular or gradual return to regular duties is required by your employer. They may also require a return to work assessment that your Oncologist is required to complete. This assesses your ability to push, pull, lift, sit, stand, etc. If your employer requires any forms to be completed by your Oncologist: • Submit your request through Health Records so it can be documented and consent form can be signed. Once you sign the consent form, the company may now be in direct contact with your Oncologist to request further documents or clarification, if needed. This cannot be done without a consent signed. • No appointment is required • Access Health Records: • In the Windsor Regional Cancer Centre on the 2nd Floor • Monday through Friday from 8:00am-4:00pm • Submit your forms immediately after you receive them so that your Oncologist has enough time to complete the form before your employer’s deadline • Fill in as much personal information (e.g. address, OHIP) on the form(s) prior to submitting them so that your Oncologist only has to fill in your medical information. If your employer requires a return to work assessment: • Typically, this can be done during your regular appointment with your Oncologist or your Oncologist can complete it without you present. Most information is a review of your cancer treatment and cancer journey, so they are able to complete it using information from prior discussions. This process may differ depending on your Oncologist. PRICES Below costs are not covered by OHIP. An invoice and receipt will be mailed to you. • • • • • • • • • •
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Back to Work Notes $ 10.00 - $25.00 Insurance Forms (short) $ 55.00 Insurance Forms or Letters $ 75.00 Attending Physician’s Statement $ 55.00 - $ 75.00 Narrative Medical Letter $ 75.00 - $100.00 Legal Medical Letter $ 150.00 / hour Full Narrative Report $ 150.00 / hour Disability Tax Credit Forms $ 35.00 Trip Cancellation Forms $ 35.00 A return to work assessment form to be filled out by the oncologist may cost you $55
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What medical records do I need to keep about my treatment? How do I access these records?
It would be good to keep a copy of the Final Progress Note from your Oncologist. Your Primary Care Provider should have received a copy of this note. This note typically contains a summary of your treatment to date, any recommendations regarding follow-up, and what to watch for to indicate recurrence. Additionally, it is suggested to keep a copy of your last imaging reports. Medical records can be obtained through the Health Records department located in the Windsor Regional Cancer Centre on the 2nd Floor. To retrieve your latest records, there is no fee. If you wish to obtain a chart summary, there is a fee starting at $33.00. No appointment is required. Health Records is open Monday through Friday from 8:00am-4:00pm.
Which follow-up tests will I need and how often?
Follow-up tests are dependent on your cancer type. Your follow-up recommendations are determined by your Oncologist and will be communicated to your primary care provider. All follow-up tests will be ordered by your primary care provider.
I am being discharged but I am still on a long-term medication (e.g. hormone receptor). Where do I go if I have any problems?
If you are currently on a hormone receptor (Tamoxifen, Arimidex, etc.) or other long-term medication and are experiencing problems, go see your primary care provider. They will assess you and determine if a rereferral to your Oncologist is required.
Symptom-related How long will common side effects last?
Some side effects experienced during treatment can continue afterward, while other side effects may show up months or even years later. It is important to let your health care team know about any symptoms you experience so they can help you manage them. Common side effects resulting from cancer treatment can include: • Fatigue. You may notice becoming tired more quickly when doing routine tasks or lacking the energy for activities you used to enjoy. Here are some ideas for coping with fatigue: Plan your day. Be active at the time of day when you feel most alert and energetic. Save your energy by changing how you do things. For example, sit on a stool while you cook or wash dishes. Take short naps or rest breaks between activities. Try to go to sleep and wake up at the same time every day. Do what you enjoy, but do less of it. Focus on old or new interests that don’t tire you out. For example, try to read something brief or listen to music. Let others help you. They might cook a meal, run errands, or do the laundry. If no one offers, ask for what you need. Friends and family might be willing to help but may not know what to do. Choose how to spend your energy. Try to let go of things that don’t matter as much now. Think about joining a support group. Talking about your fatigue with others who have had the same problem may help you find new ways to cope. • Memory and thinking problems. Often called “chemobrain,” this side effect of chemotherapy causes some people to have trouble concentrating or remembering things. Here are some ideas to improve memory and concentration: Jot it down. You can write down each task, how long it will take, and where you need to go in a notebook or pocket calendar. Plan your whole day. Keep it simple, and be realistic about how much you can do in a day. Set up reminders. Put small signs around the house to remind you of things to do, such as taking out the trash or locking the door. Your Way Forward
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Group long numbers into chunks. For example, the phone number 812-5846 can be repeated as “eighttwelve, fifty-eight, forty-six.” Talk yourself through tasks. When doing a task with a number of steps, such as cooking or working on a computer, whisper each step to yourself. Manage stress. Managing stress better may improve your memory and attention. And learning how to relax can help you remain calm even in stressful moments. Go over what you plan to say. Before you go to family events or work functions, go over names, dates, and key points you want to make. Repeat what you want to remember. Saying it a couple of times can help your mind hold on to the information. • Mouth and Teeth Problems. Some cancer treatments can cause symptoms like dry mouth or increase the risk of developing long-term dental issues like gum disease. Some strategies include: Keep your mouth moist. • Drink a lot of water. • Suck on ice chips. • Chew sugarless gum or suck on sugar-free hard candy. • Use a saliva substitute to help moisten your mouth (e.g. SalivaSure, Biotene Dry Mouth Oral Rinse, or Salagen). Keep your mouth clean. • Brush your teeth, gums, and tongue with an extra-soft toothbrush after every meal and at bedtime. If it hurts, soften the bristles in warm water. • Ask your dentist for tooth sponges, such as Toothettes® or Dentips®, that you can use in place of a toothbrush. • Use a mild fluoride toothpaste (like children’s toothpaste) and a mouthwash without alcohol. • Floss your teeth gently every day. If your gums bleed or hurt, stay away from the areas that are bleeding or sore, but keep flossing your other teeth. • Rinse your mouth several times a day with a solution of 1/4 teaspoon baking soda and 1/8 teaspoon salt in 1 cup of warm water. Follow with a plain water rinse. • If you have dentures, clean, brush, and rinse them after meals. Have your dentist check them to make sure they still fit you well. If your mouth is sore, remember to stay away from sharp, crunchy foods, like chips, that can scrape or cut your mouth. • Foods that are hot, spicy, or high in acid, (citrus fruits and juices), can cause irritation • Sugary foods, like candy or soda, that can cause cavities • Toothpicks (they can cut your mouth) • All tobacco products • Alcoholic drinks • Lymphedema. When lymph nodes are removed during cancer surgery, swelling in the arms, legs, neck, or face may occur because of fluids that build up in those areas. Attend classes to learn about lymphedema, how to identify, prevent and treat it at the following locations through videoconference on the 1st Friday of every month from 2:00-3:00pm. No registration is required. • Bluewater Health (Thames Room) • Chatham-Kent Health Alliance (Sydenham Room) • Erie Shores HealthCare (Dietary Conference Room) • Windsor Regional Cancer Centre (Casino Cares Room) If you develop lymphedema, speak to your primary care provider about how to access lymphedema services in the community. • Neuropathy. Some chemotherapies can cause numbness, tingling, or pain in the hands or feet. These feelings may slowly subside or they can be permanent. Medications can be prescribed to help with the nerve pain, such as Gabapentin or Lyrica. People have also tried Magnesium with good results.
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My appearance has changed (e.g. hair loss, scars from surgery). How do I adjust to this?
There are many online and in-person support groups listed in this package that can address these issues. You are encouraged to surround yourself with positive, supportive people who listen and do not judge. Individual counselling can also be helpful in this situation. Individual counselling resources are listed in this package as well.
How do I cope with the changes to intimacy and sexuality?
Educate yourself on changes in sexual functioning using resources such as Sex, Intimacy and Cancer by the Canadian Cancer Society*. Speak to your care team about concerns and changes in your sexual functioning, as well as your partner. Tell your partner about your feelings of loss, fear and changes in your relationship. Consider counselling as an individual or with your partner for emotional concerns. Lastly, learn new ways to communicate sexually with your partner. *Found online at www.cancer.ca/~/media/cancer.ca/CW/publications/Sex%20intimacy%20and%20 cancer/32061-1-NO.pdf
I am having pain. How do I know when it is serious?
Uncontrolled pain is a common problem. Pain can affect anyone at any age. If you are experiencing uncontrolled pain it can affect day-to-day activities and make you feel upset or sad. If you are in pain, there are many resources you can turn to for help. Your primary care provider is available to help find the best way to relieve or manage your pain.1
What symptoms should I look for? How do I know if I am having a recurrence?
You know your body best. If you notice any changes to your body, bring them forward to your primary care provider. Your primary care provider will assess your symptoms and determine if any tests need to be ordered. If test results come back concerning, your primary care provider will make the appropriate referral to the surgeon or re-referral to the Cancer Program.
Other My caregiver has been along this journey with me too. What should my caregiver do now?
Your caregiver must practice self-care and continue to communicate with you regarding your needs. If needed, counselling is encouraged for your caregiver, or the both of you, to help sort out issues you are not able to sort out yourselves. You can also seek support groups offered in the community. Support groups and counselling services are all listed in this package.
What are your thoughts on complementary and alternative medicines?
Be sure to let your primary care provider or oncologist know that you are taking natural medicines. Once your chemotherapy is completed, it should be fine to try the alternative medicines. Visit the Complementary and Alternative Medicines website to view the evidence that is available for different treatments: https://www.cancer.gov/about-cancer/treatment/cam
Does my diet change?
Now that treatment is completed, it is important to maintain a healthy diet and lifestyle to lower the risk of your cancer coming back. Achieving and maintaining a healthy body weight is one of the most important ways to reduce your cancer risk. Planning a well-balanced diet using Eating Well with Canada’s Food Guide and enjoying regular physical activity will help you achieve this. Enjoy more plant-based foods like vegetables, fruit, whole grains, and legumes. Eat less red meat, processed foods, and beverages containing added sugar. It is best not to drink alcohol. However, if you do consume alcohol, limit consumption to two drinks per day for men and one drink per day for women. You can access Eating Well with Canada’s Food Guide online at: https://food-guide.canada.ca/en/ Your Way Forward
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What can I do to be as healthy as possible?
Some risk factors cannot be avoided such as age, family history, and genetics. However, there are six modifiable risk factors that are health behaviours we can change: being smoke free, being physically active, maintaining a healthy weight, eating a healthy diet, limiting alcohol intake, and avoiding excess sun exposure. It is also recommended that you schedule regular check-ups with your primary care provider.
How do I go about being physically active?
Exercising before, during and after cancer treatment is safe for most people. Ask your health care team if you need to change your exercise routine to make it safe. Warm up for a few minutes before you exercise to get your muscles moving. Good warm-up activities are marching on the spot, stretching, walking and gentle arm circles. Cool down after you exercise with light exercises and stretching. Respect your pain and fatigue levels and only do what feels good and safe. After surgery, most people can return to their regular exercise routines in about 4 to 8 weeks. Ask your surgeon about exercises to help your body recover and when it is safe to go back to your presurgery exercise routines. Stop exercising if you feel: • dizzy • short of breath • chest pain • new pain or more pain than usual • new or more swelling in your arm(s) or leg(s) • increased fatigue and/or decreased energy • more sweaty than normal, for no reason. If you have any changes in your body after exercising that are not normal for you, tell your health care team at your next visit. Do exercise that feels right for you. Exercise on your own or in a group. Exercising with others may give you the support you need to keep doing it. If you would like to exercise with others, consider joining a RENEW Exercise Program (www.wrh.on.ca/renew). Do exercise that is not too easy or too hard for you. You should be able to talk but not sing while doing the exercise. You can still exercise if you have limited mobility or trouble with standing and balance. Many exercises can be adapted or done while sitting, such as: • seated yoga, Pilates or dancing • using an arm cycle or resistance bands • swimming or water aerobics It is important to keep your body moving no matter what level of ability you have. Exercise at your own pace. Think about your energy level and do activities that feel comfortable. SOURCES: CancerCare. (2017). After Treatment Ends: Tools for the Adult Cancer Survivor. New York, U.S.A: CancerCare. National Cancer Institute. (2018 March). Facing Forward: Life After Cancer Treatment. Registered Nurses’ Association of Ontario. (2003). Health Education Fact Sheet: Gaining Control of Your Pain. Toronto, Canada: Registered Nurses’ Association of Ontario. 1
DISCLAIMER: The Windsor Regional Cancer Program does not monitor and has no control over the information accessed through the internet. The internet offers access to many valuable sources of information; however, not all sources on the internet provide current, accurate, or complete information. We encourage you to carefully evaluate the information you receive from the internet.* *Adopted from The Hospice of Windsor and Essex County
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COMMUNITY SPONSORS
Windsor Regional Hospital would like to thank the many local businesses/sponsors who made this Guide possible for our patients. Please take a moment to review the following advertisements. You will find an excellent variety of services which may be helpful to you during or following your hospital stay.
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LYMPHEDEMA
Lymphedema can occur directly after cancer treatment or years later. Warning signs of Lymphedema are: 1. Swelling in the area near the treatment site. 2. Clothing or jewelry is no long fitting well that is not due to all over weight gain. 3. The area feels heavy, stiff or firmer. 4. The skin feels tight or stretched and may become shiny. 5. Pain, pins and needles or aches in the swollen area. If you are experiencing these symptoms or want more information please contact these Certified Lymphedema Therapists: TECUMSEH LASALLE Maddie Simone RMT CLT
Nancy Ali RMT CLT
(519)890-3068
(226)788-3050
Maddie.simone@yahoo.com
Nancy.ali.rmt@gmail.com