Parkinson's Disease Community: Support Group

too much sensory input,,,noise, crowds, multitasking are all difficult for me. Overwhelming situation triggers...

Posted by kabenn

2 Replies | Reply | Watch This Discussion Report This | Share this:noise sensitivity too much sensory input,,,noise, crowds, multitasking are all difficult for me. Overwhelming situation triggers...

Reply: Parkinson's Cough

Hi mrswamy, How is your mother doing? Just wanted to check in and see what you decided to do.

Posted by atti_editor

1 Reply | Reply | Watch This Discussion Report This | Share this:Parkinson's Cough Hi mrswamy, How is your mother doing? Just wanted to check in and see what you decided to do.

Spacial problems

I have noticed over the last 8 months or so I no longer can park my car properly. I am always crooked, always...

Posted by happydsr

0 Replies | Reply | Watch This Discussion Report This | Share this:Spacial problems I have noticed over the last 8 months or so I no longer can park my car properly. I am always crooked, always...

Shaking on the inside

Posted by happydsr

Take the Poll

Is shaking on the inside a common feeling? I feel like I have restless leg syndrome in my whole body

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I am new

I am new to this whole PD issue. I was just diagnosed and having been having symptoms for a few years. I want...

Posted by happydsr

0 Replies | Reply | Watch This Discussion Report This | Share this:I am new I am new to this whole PD issue. I was just diagnosed and having been having symptoms for a few years. I want...

Bozz6951

who has had DBS for PD treatment and how much did it cost after insurance paid for it?

Posted by bozz6951

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insurance

just got PD - anywhere I can buy LTC insurance now?

Posted by opsguy1

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Reply: Pain and Parkinsons

my mom is also having pd since last 4 year,and now since one year she is also having the problam of cramps...

Posted by narenrai1111

29 Replies | Reply | Watch This Discussion Report This | Share this:Pain and Parkinsons my mom is also having pd since last 4 year,and now since one year she is also having the problam of cramps...

Throat Discomfort

I am a 46 year old mother, diagnosed some seven years ago with PD. I am managing so far without any...

Posted by vdillard

0 Replies | Reply | Watch This Discussion Report This | Share this:Throat Discomfort I am a 46 year old mother, diagnosed some seven years ago with PD. I am managing so far without any...

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Reply: Parkinson's disease and digestive disorders

My husband who has PD, has for years experienced pain right below the rib cage more dormant in the day,...

Posted by 5blindboys

28 Replies | Reply | Watch This Discussion Report This | Share this:Parkinson's disease and digestive disorders My husband who has PD, has for years experienced pain right below the rib cage more dormant in the day,...

Reply: Is velvet bean the same as kapikacchu?

Thanks for the info. My Ayurvedic doctor has suggested that I take 1tsp 2x daily, cooked into food if possible...

Posted by emmyzuck

Take the Poll

Anyone taking kapikacchu powder as source of l dopa? Recommended dose ?

2 Replies | Reply | Watch This Discussion Report This | Share this:Is velvet bean the same as kapikacchu? Thanks for the info. My Ayurvedic doctor has suggested that I take 1tsp 2x daily, cooked into food if possible...

Reply: Looking for good information

I checked the local library. One book we have found helpful is "Parkinson's Disease 300 Tips for Making...

Posted by luv2fishpublic

2 Replies | Reply | Watch This Discussion Report This | Share this:Looking for good information I checked the local library. One book we have found helpful is "Parkinson's Disease 300 Tips for Making...

Reply: Possible parkinsons?

Hi Joe, Unfortunately there isn't a way to upload a video right into your post. However, you can upload...

Posted by atti_editor

1 Reply | Reply | Watch This Discussion Report This | Share this:Possible parkinsons? Hi Joe, Unfortunately there isn't a way to upload a video right into your post. However, you can upload...

Reply: Mirror Movement Disorder

Hi keykee I do understand what u go thought because I got what your son going through and yes he will fine...

Posted by wendy2022

3 Replies | Reply | Watch This Discussion Report This | Share this:Mirror Movement Disorder Hi keykee I do understand what u go thought because I got what your son going through and yes he will fine...

Poor blood circulation/blood clot (Acute thrombus)...

Hello, My dad (80 years old) has been dealing with Parkinsons for the past 8+ years. He fell down in...

Posted by rise_above

0 Replies | Reply | Watch This Discussion Report This | Share this:Poor blood circulation/blood clot (Acute thrombus) in legs in Parkinsons patients Hello, My dad (80 years old) has been dealing with Parkinsons for the past 8+ years. He fell down in...

Reply: Intracranial Hypertension

I was diagnosed in 2008 . I was wondering how you are today or are you in remission?

Posted by sieck123

10 Replies | Reply | Watch This Discussion Report This | Share this:Intracranial Hypertension I was diagnosed in 2008 . I was wondering how you are today or are you in remission?

Reply: Parkinson's Mis-diagnosis

Hi geoduck, I am sorry to hear of what has happened to your father. Here are some frequently asked...

Posted by atti_editor

1 Reply | Reply | Watch This Discussion Report This | Share this:Parkinson's Mis-diagnosis Hi geoduck, I am sorry to hear of what has happened to your father. Here are some frequently asked...

Early but inconsistent symptoms of PD?

Hello all, For a few months I have been concerned about the possibility I have PD. My concern started...

Posted by unsureaboutpd

Hello all,

For a few months I have been concerned about the possibility I have PD. My concern started when I seemed to have developed more shaking in my hands (I've never had the steadiest hands around), which made me remember a few incidents from a few years before. At that time, on 3-4 occasions I recall that while I was walking I had difficulty moving at my normal pace, as though my legs were stuck in thick mud. It was a struggle just to take small steps. Then the feeling would pass, and it has not recurred since then. There are times when my right leg feels weak for a brief period, then it passes.

For a couple years, I have experienced frequent leg cramps in both legs, and last night my right leg felt painfully tight. Also, when I lay down to sleep, or nod off in front of the TV, I often jerk back to wakefulness, sometimes more than once.

I also have occasionally had momentary, infrequent balance problems and for a while a year or two ago was having occasional lip numbness/tremor.

About three weeks ago, while sitting down with my feet up, I had a terrible pain in my lower leg, ankle and foot, somewhat like a cramp but it lasted longer and felt like that whole area was being twisted as if it were an item of wet laundry being wrung out. It only happened once.

Except for the leg cramps, jerking awake and occasional leg weakness, each of these symptoms has come for a short period and then gone for months or years.

My question is whether this type of pattern of symptoms is consistent with anyone else's experience with PD. Raising the issue with my doctor could have all kinds of implications, not the least of which insurance issues, so before I go down that path I would very much appreciate hearing from others who may have gone down a similar path.

Thank you for reading and for any help you may be able to provide.View Thread

Posted by unsureaboutpd

0 Replies | Reply | Watch This Discussion Report This | Share this:Early but inconsistent symptoms of PD? Hello all, For a few months I have been concerned about the possibility I have PD. My concern started...

Reply: neuropathy

Had his B-12 checked and it's normal.

Posted by neatiam

9 Replies | Reply | Watch This Discussion Report This | Share this:neuropathy Had his B-12 checked and it's normal.

Reply: Cant wake mother in law up this ,morning

Ditto to worn1's instructions. Notify MD immediately. Make sure she is breathing ok. If you can, turn...

Posted by lovedogs1955

2 Replies | Reply | Watch This Discussion Report This | Share this:Cant wake mother in law up this ,morning Ditto to worn1's instructions. Notify MD immediately. Make sure she is breathing ok. If you can, turn...

The Helen Foundation

Please see this discussion on this website in the Parkinson's Disease Community ...

Posted by An_257972

0 Replies | Reply | Watch This Discussion Report This | Share this:The Helen Foundation Please see this discussion on this website in the Parkinson's Disease Community ...

Reply: Use Caution with Microdose Therapy Program

Three peoples experience with The Helen foundation at: scamorg.com/helen-foundation-43 . One story there is...

Posted by star4health

3 Replies | Reply | Watch This Discussion Report This | Share this:Use Caution with Microdose Therapy Program Three peoples experience with The Helen foundation at: scamorg.com/helen-foundation-43 . One story there is...

Looking for Holistic Alternatives

My mother has been taking medications given by her doctor for parkinson's over 5 years now. It...

Posted by daughter_ofparkinsons

0 Replies | Reply | Watch This Discussion Report This | Share this:Looking for Holistic Alternatives My mother has been taking medications given by her doctor for parkinson's over 5 years now. It...

Reply: help a university student with a project

Hello. My name is Donna Dee , I live in Daytona beach Fla. I am 65 and was diagnosed 8 years ago with P.D. I...

Posted by donnadee49

6 Replies | Reply | Watch This Discussion Report This | Share this:help a university student with a project Hello. My name is Donna Dee , I live in Daytona beach Fla. I am 65 and was diagnosed 8 years ago with P.D. I...

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Reply: Parkinson's disease and chronic cough

I never thought I would find others with basically identical circumstances. My father is 82 y/o and lives...

Posted by erik1000

6 Replies | Reply | Watch This Discussion Report This | Share this:Parkinson's disease and chronic cough I never thought I would find others with basically identical circumstances. My father is 82 y/o and lives...

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Reply: Parkinson and Pituitary Tumor

I found this very interesting as I have had a Pituitary Tumor removed twice and now I too have Parkinson's?...

Posted by bimboe9

2 Replies | Reply | Watch This Discussion Report This | Share this:Parkinson and Pituitary Tumor I found this very interesting as I have had a Pituitary Tumor removed twice and now I too have Parkinson's?...

Reply: Shakes

I have Parkinson's and when I was first diagnosed I could hardly set in a chair I was shaking all over although...

Posted by wmalice

1 Reply | Reply | Watch This Discussion Report This | Share this:Shakes I have Parkinson's and when I was first diagnosed I could hardly set in a chair I was shaking all over although...

Reply: Bed sores after fall

Hi rise_above, Here are some tips that I found from the National Parkinson Foundation to help alleviate...

Posted by atti_editor

9 Replies | Reply | Watch This Discussion Report This | Share this:Bed sores after fall Hi rise_above, Here are some tips that I found from the National Parkinson Foundation to help alleviate...

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Reply: What Do You Do When The Doctors Can't Diagnose You...

Have they ever tested you for mercury toxcicity? it will be found in the hair.. if you have been around spays...

Posted by samson5

35 Replies | Reply | Watch This Discussion Report This | Share this:What Do You Do When The Doctors Can't Diagnose You? Have they ever tested you for mercury toxcicity? it will be found in the hair.. if you have been around spays...