Temporary Disabled. :) please Go back Alexion www.fgks.org » Address: [go: up one dir, main page] Include Form Remove Scripts Accept Cookies Show Images Show Referer Rotate13 Base64 Strip Meta Strip Title Session Cookies MAKING A MEANINGFUL IMPACT FOR PEOPLE LIVING WITH RARE DISEASES, EVERYDAY Learn how we are taking bold steps to improve health equity for people living with rare diseases. Skip to Content Investors News & Media Contact Us Worldwide North America Latin America Europe & The Middle East Asia Pacific Canada (English) Canada (French) United States Brazil Colombia Austria Belgium Denmark France Germany Ireland Italy (English) Italy (Italian) Netherlands Norway Spain Sweden Switzerland Turkey UAE United Kingdom Australia China Japan Our Inspiration Living With Rare Diseases Real Stories NF1 aHUS gMG HPP LAL-D NMOSD PNH Support Services Albie, one of our guiding stars When Albie was born, his mom, Charlotte, said that he was “absolutely fine. Everything was fine for about two weeks.” Our Medicines Conditions We Treat aHUS gMG HPP LAL-D NF1 PN NMOSD PNH Medicines Our medicines help people like Donnan As a father of two young children, Donnan recalls being afraid of what the future would hold prior to his diagnosis. Our Research Research and Development Our Science Pipeline Research Partnerships Discovery Partnerships Externally Sponsored Research We innovate for Ruthie Married with a newborn son, Ruthie was scared to learn that PNH was a life-threatening illness that at the time had no approved treatment. Our Commitment Corporate Social Responsibility Alexion Charitable Foundation Managed Access Programs COVID-19 We give back for families like Evie's At only three months old, Evie's parents were told that her case was severe and that there were no approved or effective treatment options. Our Company About Us Leadership Inclusion & Diversity History Ethical Standards Quality Product Safety Liz is our inspiration Although physical challenges required Liz, her husband, and their children to adjust their lives in many ways, she doesn't let her disease hold her back. Your Career Career Opportunities Join Our Team Working Here Benefits Culture Make a difference for families like Tristan's Tristan's parents experienced a whirlwind of emotions and fear after learning their 5-year-old son had such a rare and serious disease. Our Inspiration Living With Rare Diseases Real Stories NF1 aHUS gMG HPP LAL-D NMOSD PNH Support Services Our Medicines Conditions We Treat aHUS gMG HPP LAL-D NF1 PN NMOSD PNH Medicines Our Research Research and Development Our Science Pipeline Research Partnerships Discovery Partnerships Externally Sponsored Research Our Commitment Corporate Social Responsibility Alexion Charitable Foundation Managed Access Programs COVID-19 Our Company About Us Leadership Inclusion & Diversity History Ethical Standards Quality Product Safety Your Career Career Opportunities Join Our Team Working Here Benefits Culture Investors News & Media Contact Us Worldwide North America Canada (English) Canada (French) United States Latin America Brazil Colombia Europe & The Middle East Austria Belgium Denmark France Germany Ireland Italy (English) Italy (Italian) Netherlands Norway Spain Sweden Switzerland Turkey UAE United Kingdom Asia Pacific Australia China Japan Inspired Every Day The work we do is guided by people living with rare and devastating diseases. We are driven to continuously innovate and create meaningful value in all we do to help patients and families fully live their best lives. SEE THEIR STORIES My hope for Tanner in the future is that he enters into adulthood. I kind of hope that he will be a doctor and maybe help kids like doctors have helped him.” RENE, MOM OF TANNER LIVING WITH HPP HEAR HIS STORY ABOUT HPP TANNER LIVING WITH HPP It was a relief to have an answer. Now I knew why I was feeling what I was feeling, so we could make a plan.” LIZ LIVING WITH gMG HEAR HER STORY ABOUT gMG LIZ LIVING WITH GMG Now we knew what we were up against, we knew we could fight.” REBECCA, MOM OF TRENDY BROTHERS LIVING WITH LAL-D HEAR THEIR STORY ABOUT LAL-D THE TRENDY FAMILY LIVING WITH LAL-D I’m hoping my story will inspire others to continue to fight for themselves." KIM LIVING WITH NMOSD HEAR HER STORY ABOUT NMOSD KIM LIVING WITH NMOSD I can chase my kids and play again. I think knowing what I have brings a peace to my life.” DONNAN LIVING WITH aHUS HEAR HIS STORY ABOUT aHUS DONNAN LIVING WITH aHUS Every day, those who live with rare diseases and devastating conditions inspire us to push the boundaries of medicine, technology, and healthcare services. Our goal is to transform their reality for the better. 6 APPROVED MEDICINES 7 RARE DISEASES & DEVASTATING CONDITIONS 25+ OFFICES WORLDWIDE 3000+ TALENTED COLLEAGUES SEE HOW WE DO IT Everyday Stories Working Every Day for the Rare Disease Community At Alexion, AstraZeneca Rare Disease, we are committed to working with the patient community and health care stakeholders worldwide to address the challenges facing the rare disease community. Together, on Rare Disease Day — and every day — we can make a powerful difference. Learn More FOLLOW US insta LATEST NEWS MORE NEWS The World Health Organization estimates that one out of 15 people worldwide could be affected by a rare disease. For more information: https://bit.ly/2EhEfWG Generalized myasthenia gravis (#gMG) is a rare autoimmune disorder characterized by loss of muscle function and severe muscle weakness. For further advice and support: https://myasthenia.org/ #RareDisease We strive to ignite an inclusive environment where people belong because of their uniqueness and unleash their individuality and diversity to spur innovative breakthroughs for patients. Join us: https://jobs.alexion.com #hiring DYK… 80% of #RareDiseases are genetic, while others are the result of infection, allergies, and environmental causes, or are rare cancers. For more information and support, visit https://globalgenes.org/rare-disease-facts/ At Alexion, you’re encouraged to take on the most daunting of challenges, settle for nothing less than transformation, and push the boundaries of what science has traditionally offered. Check out our career opportunities: jobs.alexion.com #hiring I just wanted to know what am I shadowboxing? I’m fighting something in the dark. I need to know what it is so I can face it properly.” AIMEE LIVING WITH gMG HEAR HER STORY × You are now leaving www.alexion.com, a website provided by Alexion Pharmaceuticals, Inc. This link will take you to a different site to which this Privacy Policy does not apply. × You are now leaving the alexion.com UK webpage for the global alexion.com website. The content on the global site is intended for a U.S. audience only
Learn how we are taking bold steps to improve health equity for people living with rare diseases.
Albie, one of our guiding stars
When Albie was born, his mom, Charlotte, said that he was “absolutely fine. Everything was fine for about two weeks.”
Our medicines help people like Donnan
As a father of two young children, Donnan recalls being afraid of what the future would hold prior to his diagnosis.
We innovate for Ruthie
Married with a newborn son, Ruthie was scared to learn that PNH was a life-threatening illness that at the time had no approved treatment.
We give back for families like Evie's
At only three months old, Evie's parents were told that her case was severe and that there were no approved or effective treatment options.
Liz is our inspiration
Although physical challenges required Liz, her husband, and their children to adjust their lives in many ways, she doesn't let her disease hold her back.
Make a difference for families like Tristan's
Tristan's parents experienced a whirlwind of emotions and fear after learning their 5-year-old son had such a rare and serious disease.
The work we do is guided by people living with rare and devastating diseases. We are driven to continuously innovate and create meaningful value in all we do to help patients and families fully live their best lives.
RENE, MOM OF TANNER
LIVING WITH HPP
TANNER LIVING WITH HPP
LIZ
LIVING WITH gMG
LIZ LIVING WITH GMG
REBECCA, MOM OF TRENDY BROTHERS
LIVING WITH LAL-D
THE TRENDY FAMILY LIVING WITH LAL-D
KIM
LIVING WITH NMOSD
KIM LIVING WITH NMOSD
DONNAN
LIVING WITH aHUS
DONNAN LIVING WITH aHUS
6
7
25+
3000+
At Alexion, AstraZeneca Rare Disease, we are committed to working with the patient community and health care stakeholders worldwide to address the challenges facing the rare disease community. Together, on Rare Disease Day — and every day — we can make a powerful difference.
The World Health Organization estimates that one out of 15 people worldwide could be affected by a rare disease. For more information: https://bit.ly/2EhEfWG
We strive to ignite an inclusive environment where people belong because of their uniqueness and unleash their individuality and diversity to spur innovative breakthroughs for patients. Join us: https://jobs.alexion.com #hiring
DYK… 80% of #RareDiseases are genetic, while others are the result of infection, allergies, and environmental causes, or are rare cancers. For more information and support, visit https://globalgenes.org/rare-disease-facts/
I just wanted to know what am I shadowboxing? I’m fighting something in the dark. I need to know what it is so I can face it properly.”
HEAR HER STORY