PODCASTS

8:30-8:45

Welcome
Yusuf Yazici, MD

8:45-9:15

Use and Abuse of the Randomized Clinical Trial
Hasan Yazici, MD

9:15-10:00

Use of Whole Population Registers: Advantages and Disadvantages
Alan Silman, MD

10:15-10:45

Longitudinal Databases and Registries-Why?
Theodore Pincus, MD

10:45-11:15

Scandinavian Registries in Arthritis and Normal Populations
Tuulikki Sokka, MD, PhD

11:15-11:45

The Norfolk Arthritis Register (NOAR)
Alan Silman, MD

12:45-13:30

Advantages and disadvantages of joint counts, radiographs, laboratory tests and patient questionnaires in Longitudinal Observational Studies
Theodore Pincus, MD

13:30 – 14:00

Expanding the Research Domains of Arthritis Clinical Databases: Pharmacogenetics of Rheumatoid Arthritis Treatments.
Jeffrey Greenberg, MD, MPH

14:00–14:30

Other databanks in the United States National Data Bank for Rheumatic Diseases
Theodore Pincus, MD

14:45 - 15:15

Implementing Patient Monitoring and Data Collection in Routine Care-NYU Hospital for Joint Diseases Arthritis Registry Monitoring Database (ARMD) and Brooklyn Outcomes of Arthritis Registry Database (BOARD)
Yusuf Yazici, MD

15:15-15:45

Data Collection in Private Practice and Implementation with Electronic Medical Records
Martin Bergman, MD

15:45:-16:15

Roundtable Discussion (including a formal comparison of the data from different registries/databases) (Chair)
Steven Abramson, MD Theodore Pincus, MDHasan Yazici, MDAlan Silman, MDTuulikki Sokka, MD, PhD Yusuf Yazici, MDJeffrey Greenberg, MD, MPHMartin Bergman, MD

16:30- 18:00

Practical workshop for patient questionnaires
Theodore Pincus, MDYusuf Yazici, MD

Supported by unrestricted educational grants from Centocor, Inc. and Genentech, Inc