Tuesday, September 9, 2014
How to Save a Life
The recent media discussion about suicide ignited by the death of Robin Williams was a stark reminder of the many misconceptions people have about suicide
Read MoreWhen you’re living a different normal
The recent media discussion about suicide ignited by the death of Robin Williams was a stark reminder of the many misconceptions people have about suicide
Read MoreI was a young girl in junior high school when the spots first started to appear on my body
Read MoreIt’s been almost 21 years since I was diagnosed with Marfan syndrome, a rare disorder of the connective tissue that affects most of the body, including the heart, eyes
Read MoreSummer’s finally here, and after the long winter with subzero temps, many people can’t wait to get out and enjoy the
Read MoreMy daughter, Brenna, was born with a rare and severe skin condition called Harlequin ichthyosis, which causes her skin
Read MoreFebruary 28 is Rare Disease Day, a time for all of us living with a rare condition to band together for awareness and improved
Read MoreMy 15-year-old son Andy and I both suffer from psoriasis and psoriatic arthritis. Psoriasis is a chronic disease of the immune system that appears as red scaly patches
Read More"So, who in your family has it?" That question plagued me for three years after my son’s diagnosis of psoriasis at age 4 in 2003
Read MoreWhen someone discovers that I am the Communications Director for FIRST, the Foundation for Ichthyosis & Related Skin Types, typically, I am greeted with the same three questions
Read MorePrior to coming to the National Institutes of Health (NIH), I was a practicing neurologist. I well remember the heart-wrenching experiences of standing at the bedside of patients
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