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Chronic Conditions

When you’re living a different normal

How to Save a Life

two women looking at a field

The recent media discussion about suicide ignited by the death of Robin Williams was a stark reminder of the many misconceptions people have about suicide

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Connecting With Community

hands joined together

It’s been almost 21 years since I was diagnosed with Marfan syndrome, a rare disorder of the connective tissue that affects most of the body, including the heart, eyes

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Taking Back Summer

woman in the sun

Summer’s finally here, and after the long winter with subzero temps, many people can’t wait to get out and enjoy the

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Fight for Treatment

My 15-year-old son Andy and I both suffer from psoriasis and psoriatic arthritis. Psoriasis is a chronic disease of the immune system that appears as red scaly patches

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Lessons in Strength and Optimism

When someone discovers that I am the Communications Director for FIRST, the Foundation for Ichthyosis & Related Skin Types, typically, I am greeted with the same three questions

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